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  • amandajroberts57

The next steps for patient-led change?

I have recently completed an MSc in Palliative Care at King’s College, London. The course was an inspiration, introducing me to fields of knowledge I would not otherwise have come across and facilitating cross-disciplinary debate with fellow palliative care professionals.


My research project focused on how storytelling might support palliative care patient-led change. I argued that the value of storytelling in supporting change-making arose partially through its capacity to initiate deep connectivity between teller and listener. The strength of connectivity achieved through visual narratives was particularly underlined. I therefore share with you the report’s recommendations for change in research and practice which I produced in visual form.


The final provocation - ‘What’s your story?’ - invites us all to acknowledge our place in the palliative care story. Samuel Beckett in Waiting for Godot succinctly captures the shape of life’s story succinctly: “They give birth astride of a grave, the light gleams an instant, then it is night once more”. We seek to use the PATCHATT initiative to ensure that we are all given the opportunity to make the most of the instant we have in the light.

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